Sasha’s story: The race to make a treatment for the girl with the ultra-rare disease
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Source: The Age
Published: 2026-07-05 05:00 UTC+10:00
Section: National
Factuality Score: 100
Opinion Category: Neutral
Topics: Health, Family
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Snippet:
In family videos, Sasha Lipworth beams, open-mouthed and elated as she zooms past on her aquamarine scooter. She giggles as she ambles along a footpath hand-in-hand with her pint-sized friend, and trills “I’m calling mummy” as she presses a comically large telephone receiver to her tiny ear.
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